The Adventures of Miss Migraine is an ongoing column about my life with chronic migraine.
After my last post about Aimovig, the first-ever drug designed specifically to prevent migraines, the Pittsburgh Post-Gazette contacted me about doing an interview with them. You can read the full story on the P-G’s website! Here’s a snippet:
“I can’t even conceptualize what’s it like to not be in constant pain,” said Kelly Lynn Thomas, a patient at UPMC. “So, the possibility of having time where I’m not in any pain is mind-blowing.”
For years, Ms. Thomas, 31, of Spring Hill-City View, has written a blog “The Adventures of Miss Migraine.” The most recent post features the new drug. “Guys. This is huge,” she begins.
I was thrilled to be able to help shed some light on this important issue, and am so glad Aimovig is getting so much press.
Now, I have an ask. Help me raise $300 to support migraine research and awareness!
Last week I started the Couch 2 5K running program. Exercise is a good tool in the migraine management tool box, but it is unfortunately also difficult to get started because, well–migraines sap your energy and suck the life out of you, and exercise tends to trigger them. So far I like the C25K program because it starts out slow and alternates running with walking for the first few weeks.
While I am already feeling the benefits of regular exercise (I really do have more energy!), I’m not just doing this for me. I’m running to raise funds for migraine research as part of migraine advocacy organization Miles for Migraine’s June Virtual Challenge.
I won’t be ready to run a full 5k by the end of June, but I’ll be halfway there. I’ll continue running in July and hope to run my first 5K in August or September. Throughout June, on non-running days, my goal is to at least go for a 30-minute walk and/or attend a yoga class. Starting June 1st, I’ll post weekly updates here about my progress.
Here’s how you can help this June and beyond:
- Make a donation through my fundraising page.
- Share my page with your social networks.
- Reach out to someone living with chronic migraine and let them know you care. If you’re able, offer to do something nice for them, or send an encouragement card or small token (just lay off smelly lotion or candles, as perfume can trigger migraines).
- Share the Post-Gazette article with your networks to help spread awareness of how difficult, isolating, and depressing chronic migraine can be.
- Ask your health insurance provider if they plan to cover Aimovig, and when. If they say no, ask why not and reaffirm how important this drug is to migraine patients.
I’m also working on some gift ideas for anyone who pledges a certain amount of money, so stay tuned for more on that!